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Pakistan teenager with rare genetic disorder to get treated in Mumbai
Saba Ahmed. Image Courtesy: bitgiving.com As a ramification of Wilson's disease, copper continually accumulates in Saba's vital organs, severely damaging her liver and brain. Doctors said that due to excess copper deposit she was not being able to walk without support or swallow anything.
Saba Ahmed. Image Courtesy: bitgiving.com As a ramification of Wilson's disease, copper continually accumulates in Saba's vital organs, severely damaging her liver and brain. Doctors said that due to excess copper deposit she was not being able to walk without support or swallow anything.
India and Pakistan may not look eye to eye on many issues, but when it comes to aiding an ailing patient across the border, they surely unite. On Monday, Saba Ahmed (15), a resident of Karachi in Pakistan, will land in Mumbai for her ongoing treatment of a rare genetic condition – Wilson's disease. Barely four persons in a population of one lakh suffer from the disease.
Good Samaritans from Mumbai have collected close to Rs 2.5 lakh for Saba's treatment. A deposit money of Rs2 lakh has been collected by donations from 86 contributors to ensure that Saba gets admitted in a hospital. From a modest amount of Rs100 to a larger sum of Rs15,000, donors have come out in solidarity to help the girl.
The online crowd funding campaign 'Save Saba,' has managed to collect 23% of the total fund required for her treatment. In April, the community spent close to Rs7 lakh for 45 days of treatment at the hospital. This time around, she will be staying in the hospital for close to two months for which the hospital has quoted the treatment amount to be Rs10 lakh. Every hundred tablets for the treatment cost up to Rs1.7 lakh.
High dosages of wrong medication due to faulty diagnosis back home had worsened her condition. As a ramification of Wilson's disease, copper continually accumulates in Saba's vital organs, severely damaging her liver and brain. Doctors said that due to excess copper deposit she was not being able to walk without support or swallow anything.
Liver specialist at the hospital Dr Aabha Nagral said, "We are trying to put her on new drugs to ameliorate her condition. She will also be put on physiotherapy and speech therapy."
In April, Saba was in private-run Jaslok Hospital for treatment. Unfortunately, after Saba went back to Pakistan, her condition has deteriorated. "She is now being brought back. We have arranged for her travel through a kind donor but we need fund to get her admitted to the hospital," said a member from The Bluebells Community, an organisation that has started the crowd funding campaign for her. "We want a young life to be saved and also pass the message that borders might divide people, but love unites them. A child on either side of the border deserves the right to live, irrespective of which country he/she is being treated in."
Help Saba
Saba Ahmed suffers from a rare genetic anomaly, Wilson's disease. She needs Rs10 lakh for her treatment at Jaslok Hospital. Currently, Rs2,36,000 have been collected. If you wish to help Saba, log on to http://bitgi.co/savesaba and do your bit towards aiding her treatment.
Source:- Pakistan teenager with rare genetic disorder to get treated in Mumbai | Latest News & Updates at Daily News & Analysis
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